http://hdl.handle.net/10222/15453 2013-05-25T04:01:58Z 2013-05-25T04:01:58Z The LINC Project http://hdl.handle.net/10222/21927 2013-05-13T17:47:33Z 2013-05-13T00:00:00Z

Life is not always so simple The LINC Project A short video speaking to the experience of living with and managing a neurological condition.

2013-05-13T00:00:00Z The LINC Project http://hdl.handle.net/10222/21784 2013-04-30T04:15:16Z 2013-04-29T00:00:00Z

My Health Tracker The LINC Project Interactive Health Tracker created by and for people living with a neurological health condition.

2013-04-29T00:00:00Z The LINC Project http://hdl.handle.net/10222/21783 2013-04-29T14:35:41Z 2013-04-29T00:00:00Z

Living with a Neurological Condition The LINC Project A short video describing the everyday life experience of two Canadians living with neurological conditions.

2013-04-29T00:00:00Z Versnel, Joan Packer, Tanya Weeks, Lori Brown, Jocelyn Godwin, Marshall Hutchinson, Susan Kephart, George MacKenzie, Diane Stadnyk, Robin Villeneuve, Michelle Warner, Grance Roger, Kerstin http://hdl.handle.net/10222/21782 2013-04-30T04:15:16Z 0213-01-01T00:00:00Z

The everyday experience of living with and managing a neurological condition (the LINC study): study design Versnel, Joan; Packer, Tanya; Weeks, Lori; Brown, Jocelyn; Godwin, Marshall; Hutchinson, Susan; Kephart, George; MacKenzie, Diane; Stadnyk, Robin; Villeneuve, Michelle; Warner, Grance; Roger, Kerstin Background: The impact of neurological conditions on individuals, families and society is increasing and having a significant economic impact in Canada. While some economic data is known, the human costs of living with a neurological condition are poorly understood and rarely factored into future burden analyses. The “Living with the Impact of a Neurological Condition (LINC)” study aims to fill this gap. It seeks to understand, for children and adults with neurological conditions, the supports and resources that make everyday life possible and meaningful. Methods/design: The LINC study is a nested study using mixed methods. We are interested in the following outcomes specifically: health status; resource utilization; self-management strategies; and participation. Three studies captured data from multiple sources, in multiple ways and from multiple perspectives. Study One: a populationbased survey of adults (n = 1500), aged 17 and over and parents (n = 200) of children aged 5 to 16 with a neurological condition. Study Two: a prospective cohort study of 140 adults and parents carried out using monthly telephone calls for 10 months; and Study Three: a multiple perspective case study (MPCS) of 12 adults and 6 parents of children with a neurological condition. For those individuals who participate in the MPCS, we will have data from all three studies giving us rich, in depth insights into their daily lives and how they cope with barriers to living in meaningful ways. Discussion: The LINC study will collect, for the first time in Canada, data that reflects the impact of living with a neurological condition from the perspectives of the individuals themselves. A variety of tools will be used in a combination, which is unique and innovative. This study will highlight the commonalities of burden that Canadians living with neurological conditions experience as well as their strategies for managing everyday life.

0213-01-01T00:00:00Z